'We lost our child in utero. Genetic tests to find out why led to discovery I had rare cancer'

euronews (in English)

'We lost our child in utero. Genetic tests to find out why led to discovery I had rare cancer'  Few cancers are passed from parent to child, but genetic testing can help identify people at higher risk. In Sidney Raskind's case, it may have saved his life – but experts say these tests come with tradeoffs.  READ MORE : http://www.euronews.com/2025/04/28/we-lost-our-child-in-utero-genetic-tests-to-find-out-why-led-to-discovery-i-had-rare-cance  Subscribe to our channel. Euronews is available on Dailymotion in 12 languages

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00:00We found out that my daughter, my new daughter, my second daughter, wasn't growing her brain

00:27because of holoprosencephaly. So we lost her. And that was the hardest thing that I've ever done.

00:37We decided to send out some DNA samples to see if there was any genetic reason why this happened.

00:45And then when we got the genetic results back, there was not any reason why this happened,

00:50but there was a deletion that has been connected with Cygnet cell hereditary diffused gastric cancer.

01:01And that is CTNNA1.

01:05So since she had it, or since she had the mutation, my wife and I sent out DNA samples for ourselves.

01:14And I came back with the mutation, but my wife did not.

01:20Now I have been able to tell all my cousins, my siblings, all of them.

01:28So they're all being tested, which is incredible.

01:31And my older sister came back with no deletion, which is amazing.

01:37Just to know that we can look for this kind of thing is an incredible insight.

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