00:00The Health Department led the Asia-Pacific Alliance of Rare Disease Organizations Conference
00:07where they discussed and helped to solve the unusual diseases in the Philippines.
00:14Dian Manalo is back.
00:19The aim of solving the rare diseases in the Philippines
00:24was confirmed by the Department of Health in the Asia-Pacific Alliance of Rare Disease Organizations Conference 2024.
00:33The conference discussed the importance of opportunities and benefits
00:39for the public to be more aware of the rare diseases.
00:43The platform will be a platform for joint initiatives and collaboration in treating diseases.
00:50Across the world, we're saying that the solution to the rare disease community
00:55is not a single solution, but multiple solutions.
00:59The implementation of health, social, and economic policies
01:05that will strengthen the programs that will benefit the rare disease community.
01:10As of now, 6,500 individuals have been affected by rare diseases in the Philippines
01:17that have been diagnosed by the DOH.
01:19DOH Secretary Ted Herbosa said that collaboration and assistance of concerned agencies and governments
01:27in treating rare diseases through the Hulup Government Approach is important.
01:32Solving health problems and saving people's lives doesn't need a law.
01:36It just needs humanity and humanism.
01:40The strengthening of the Newborn Screening Program, Diagnosis, and Management is also possible.
01:46The government is also coordinating with other stakeholders in addressing the so-called diseases.
01:52It's more important, as you're saying, to have the system in place that you can implement and you can access.
01:58The Asia-Pacific Alliance of Rare Disease Organizations Conference is focused on opening up freedom,
02:05promoting advocacy, and developing innovative solutions for the rare disease community.
02:12BN Manalo for Pambansang TV in the new Philippines.
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