Emofilia, a Torino evento Sobi e Acep per il benessere psicofisico di bambini e ragazzi

adnkronos

(Adnkronos) - A Torino l’incontro ‘OLTRE LAB. Dalla consapevolezza all’empowerment’, organizzato da Sobi con il patrocinio di Acep - Associazione Coagulopatici Emofilici Piemontesi “Massimo Chesta” ODV.

Transcript

00:00EMPOWERMENT

00:05Giving support to the caregivers of children and young people with haemophilia,

00:09offering tools and strategies to face the daily challenges related to the control of the pathology.

00:15This is the theme of the meeting, in addition to LAB, from awareness to empowerment,

00:20organized by SOBI with the sponsorship of ACEP,

00:23Coagulopathic Haemophilic Piedmontese Association, Massimo Chesta, ODV, based in Turin.

00:29The management of haemophilia for us doctors, but also and above all for the patients and their families,

00:34has completely changed.

00:36Now we no longer have to worry because we have the possibility to solve the problem

00:42on the main problems of haemophilia, such as bleeding and bruises.

00:48Now we have to focus more on the management of the haemophilia problem in an absolutely normal life.

00:56It is possible today to effectively protect even situations of daily life,

01:03I think in particular of sport, long walks.

01:07As far as children are concerned, there is an attitude to mitigate fears

01:15in getting closer to physical activity, especially in the school environment.

01:21The key is adequate information,

01:25an ability to take advantage of multidisciplinarity

01:31and to give patients awareness of their limits and the protection possibilities we have today.

01:40Experiences such as LAB are essential to give more and more awareness to the patient and to the family

01:48about how the association and the patient themselves can collaborate in obtaining what we all want,

01:56that is, a life free of disease.

01:59Initiatives like these are very important because they support what is empowerment,

02:04so the possibility for people with haemophilia to reach and above all to raise the bar

02:11precisely for what is their ambition in the approach to pathology.

02:15For us it is essential to be present and to promote the dynamics of collaboration in this sense.

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