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00:17Jenny, it's time to eat.
00:20Huh?
00:21Your sister is looking at you.
00:24You're going to be late for your dad's wedding.
00:26Come on, let's eat.
00:28I'm not your dad.
00:31Come on, let's eat.
00:34Colleen, come on, let's eat.
00:37And here's your lunch, okay?
00:41I thought I was going to eat lunch at the school cafeteria.
00:44You know, it's hard to trust the food outside.
00:47You have to get the proper nutrients that you need
00:51so that we can treat the symptoms of your illness.
00:54Sorry.
00:58Colleen, you have a lot of rashes.
01:03Your skin is getting dry.
01:04Where is your moisturizer?
01:06Where did you put it?
01:07Did you bring it?
01:11I told you, you need to take care of your moisturizer.
01:15Look at your pinky finger.
01:17Look at it.
01:18It's already swollen.
01:21Do you do the hand exercises that Doc taught you?
01:25Do you do it?
01:27Yes, Mom.
01:28I just forgot because I'm busy at school.
01:31You have to do it regularly.
01:34You know, your skin will tighten up quickly.
01:37What if it continues?
01:39How will you survive?
01:41What will you do?
01:42How can you eat?
01:43How can you write?
01:44Look, you're already having a hard time.
01:47Mom, no one knows what's really happening to me, right?
01:51Because there's no medicine for my illness.
01:55Jenny, I have something to do at school.
01:57I'll go ahead.
02:00Colleen, you haven't finished your food yet.
02:03You're sick.
02:04Your son is also suffering.
02:08Dad, I'm doing this for him.
02:11What do you want?
02:12Do you want us to let him get away from us?
02:14Do you want him to leave us soon?
02:18Colleen!
02:19I'll go ahead.
02:22Okay, go ahead.
02:34Is he at school?
02:41I'll go ahead.
02:45Oops!
02:46Sorry.
02:49Is this Colleen?
02:53It's you!
02:54Colleen!
02:56My name is Colleen, not Schooline.
03:01Is that so?
03:02But you know what?
03:04You look better with Schooline.
03:06Because you have a sore throat, right?
03:11And can't you hide your teeth while eating?
03:15Because you have a sore throat.
03:17Yuck!
03:18Can you stop eating?
03:22You're so brave!
03:23Get off me!
03:30You're disgusting!
03:31Yuck!
03:32Eww!
03:34I can feel your rashes!
03:36Eww, girl!
03:38Let's go, girl!
03:39I need to go to the bathroom because there's a lot of alcohol.
03:46Bye, Schooline!
03:57Let them be.
04:00You're so beautiful.
04:02Your eyes are so beautiful.
04:06They're so ugly on the outside but ugly on the inside.
04:12Let them be.
04:15Go ahead, eat.
04:19Colleen, how was your childhood before your condition now?
04:23Thankfully, Auntie Mel, by God's grace, my childhood up until my early 20s,
04:30I had a relatively normal life.
04:32Save for the appearance of my lips.
04:35Because I had my lips closed ever since I was diagnosed.
04:39And when were you diagnosed?
04:41I was 12 years old, roughly around 2007.
04:45And now, I'm 28 years old.
04:48But at that time, when you were 12 years old,
04:51what were you feeling?
04:53Why were you brought to the doctor?
04:56I was confined to the hospital.
04:59And when I was discharged, my mother noticed that after one week,
05:03my whole body started to swell like a tomato.
05:07Swelling?
05:08Yes.
05:09And then?
05:10My mother was worried.
05:11At first, we were brought to a dermatologist.
05:14But the dermatologist then referred us to a rheumatologist.
05:18And then, that's when we found out that I had scleroderma.
05:22Scleroderma?
05:23Yes.
05:24What did the doctor say?
05:26What did he explain?
05:27What kind of disease is that?
05:29Scleroderma is a rare autoimmune disease.
05:32Yes.
05:33My general life expectancy when I was diagnosed with scleroderma is 5 years.
05:39Why is that a derma disease?
05:43My main doctor for scleroderma is a rheumatologist.
05:47A rheumatologist?
05:48Yes.
05:49But scleroderma has two types.
05:51One manifests on the skin, so skin tightening.
05:55If it's too tight, my limbs will auto-amputate.
05:59So if I don't moisturize, my fingers will suddenly fall off.
06:25♪♪♪
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07:17Colin!
07:18Son!
07:19Do you want to...
07:21Oh!
07:22Colin!
07:23What happened to you?
07:24How did that happen?
07:26I told you, you can't get hurt.
07:30Mom, I was bullied.
07:33Are you going to make me angry?
07:35Colin, I'm not making you angry.
07:37I already told you.
07:38Don't pay attention to them.
07:40Don't listen to them.
07:42Think about your strength.
07:45Look around you, Mom.
07:47Do you see pictures of my friends?
07:50None.
07:51Because I don't have friends.
07:53Do I receive gifts from someone who admires me?
07:57None.
07:58Because no one loves me.
08:01All my life, I'm an outcast.
08:04They think I'm a freak.
08:06That's why, son, you have to focus on yourself.
08:10Focus on us, your family.
08:12Because if you're just here in this family,
08:14you will never feel like a freak.
08:16Really, Mom?
08:17Yes!
08:18You should just lock me up in a cage
08:20so you'll know everything I do.
08:23All the moves I make,
08:24all the food I eat,
08:25all the rashes I get,
08:28how much my fingers are swollen.
08:32Son,
08:33I just want you to get better.
08:37Stop saying that, Mom.
08:39We know that won't happen.
08:42We know that won't happen.
09:12We know that won't happen.
09:42We know that won't happen.
09:44We know that won't happen.
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