Five-year-old Ezra from New Jersey has never attended school or experienced many things most children take for granted.
He has X-linked CD40 ligand deficiency, which is a rare form of primary immunodeficiency or PI. PI encompasses over 200 different disorders and is caused by hereditary or genetic defects in which part of the body’s immune system is missing or fails to properly function.1 Proper treatment of PI requires regular medical care, including frequent needle sticks, which can be frightening for children. In Ezra’s case, his serious condition and two stem cell transplants mean that he must stay in isolation in his own home to protect his health.
Read More: http://3blmedia.com/News/Day-Fun-and-Friendship-Young-PI-Patient-and-Special-Visitor
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