Justter

This channel is to support, raise awareness, and educate people on a very poorly understood disease called myalgic encephalomyelitis.

I suffer from the severe form of M.E. *myalgic encephalomyelitis* and all that goes along with it such as severe tachycardia, dysautonomia, cognitive dysfunction, GI problems, bladder and bowel problems, the inability to regulate my body temp. chronic and severe pain, etc. I also have adult-onset sporadic hemiplegic migraine disorder.

I have been ill for going on 16 years now, so I consider myself a veteran. ;)

I was also diagnosed with vesicoureteral reflux disease when I was 5, and as a result have been in and out of hospitals most of my life, sometimes in renal failure. I now only have 1 functional kidney, as my right one atrophied due to scarring from recurrent infection.

I have mitral valve prolapse with slight regurgitation, which I attribute to the M.E.

I am married to a wonderfully compassionate and understanding man who is not only the love of my life, but also my best friend. Between us we have 4 incredible kids and 1 beautiful granddaughter.

Oh, and for the record, I am a smoker who has tried unsuccessfully multiple times to quit. I just thought I would go ahead and "out" myself. This in no way discredits the information I post on my videos, and I am fully aware of how bad cigarettes are for me. Hopefully one day I will be able to quit, but until that day, I still intend to try to advocate and raise awareness for M.E. patients.

If you are reading this and do not know what M.E. is, please do your part and educate yourself.

http://ahummingbirdsguide.com/

If you don't understand how severe ME is, please visit the Patient Memorial List!

http://www.ncf-net.org/memo...

Live to fight and fight to live.