00:00Retinoplastoma is a disease or a disease cancer that has 5 years old when children are in 5 years old.
00:08This disease is full of life and the disease is full of years.
00:16Retinoplastoma's condition is why we will talk about PGIK Dr. Usha Singh.
00:24Retinoplastoma is your expertise.
00:26How is Retinoplastoma's start?
00:31How is Retinoplastoma's start?
00:37Retinoplastoma is a retinoplastoma.
00:42Retinoplastoma is very sensitive to the skin.
00:45It is very sensitive to the skin.
00:49Why is it?
00:50It is not a reason for this.
00:52But there are two ways.
00:54When a child is in the stomach, the child is different from his life.
01:01There are genetic changes or mutations.
01:05One is that it is going to be in the family.
01:06When a child is in the stomach, the child is in the stomach and the child is in the stomach.
01:15It is a good example.
01:16There are two ways.
01:17One is sporadic and the other is hereditary.
01:20So, this is what ...
01:25Retinoplastoma has started.
01:27It makes ailments, living teeth,
01:31It means that the parents say that the child is growing, then it will be fine.
01:37So, this is the beginning of the action where the mother has a cancer.
01:44What kind of action do you have to recognize?
01:49Look, it is the beginning of the action.
01:53In the beginning of the action, there is an eye on the skin.
01:56So, it means that there is a tumour in the eye, and it is reflected back in the eye.
02:03So, we recognize that this is a green light.
02:07So, we call it white cat's eye reflects.
02:10We call it white eye reflects.
02:13We call it white eye reflects.
02:14We call it white eye reflects.
02:23We call it white eye reflects.
02:25We call it white reflects.
02:27This is the most common.
02:29In 80% of the white eye reflects.
02:32In 20% of the squint.
02:35This is the first thing.
02:38So, this is the first thing.
02:41The tumour is out of the way.
02:45When the tumour has been affected.
02:48I will say that the children of the child,
02:52the children of the child.
02:54The children of the child,
02:54they do not know where to go for treatment.
02:57So, this is the retinoplastoma.
03:01If you talk about the treatment of this treatment of india,
03:04how much of this treatment is done?
03:06Is it a center of Chandygarh,
03:08or a large institution that is working on this special cancer?
03:18We have patients from Punjab, Haryana, Himachal, Jammu, Kashmir, some parts of Uttar Pradesh and Rajasthan.
03:27But there are other centers in Delhi and some prominent centers in South.
03:33There were many centers.
03:34There were many centers.
03:35There were many centers.
03:37There were many centers.
03:39There were many centers.
03:40There were many centers.
03:40I have told you that in the past, there are 70-80 patients with this disease.
03:45Or with the retinoplastoma.
03:48And their treatment is years after years.
03:50You have seen one of our patients from 2003.
03:57And they are happy that they have a treatment here.
04:01And they have some vision.
04:04So, this is the initial treatment of parents.
04:08They are afraid of children.
04:10They are afraid of children.
04:11So, what do you want to say to parents?
04:14If there is a disease, how do they react?
04:18As I know that parents are seeing something that they are seeing.
04:23So, first of all, parents need to go ahead and reach.
04:27So, this is the need for awareness.
04:28The need for awareness is that there is no normal thing to you.
04:32It is not normal.
04:33It is not normal.
04:35You must go to the hospital.
04:37Go to any specialist at the hospital.
04:38Don't go to any.
04:39The symptoms are so beautiful.
04:43So, for some of us, we should be able to take a specialist's opinion.
04:46So, what happens sometimes in small hospitals?
04:50They say that it's okay.
04:51Or the doctor doesn't have that experience.
04:55He also says that the rest of them are okay.
04:58So, let's see.
05:00So, what happens in this disease?
05:01This disease is valuable.
05:05If you don't reach the time,
05:08then the tumor increases.
05:10So, like this child,
05:11there was a tumor in both his eyes.
05:14His parents were taken.
05:15In one eye, the disease was increased.
05:19And in the other eye,
05:20there were small tumors.
05:21So, the big one left eye,
05:24the tumor was advanced.
05:26He couldn't save it.
05:28But the right eye,
05:30there were small tumors.
05:31He gave treatment.
05:33And his eyes also affected.
05:36In 2003,
05:38we were affected.
05:39He was affected.
05:41He was affected.
05:44He was affected.
05:44because of the damage,
05:46there was a cataract in the beach.
05:48So, there were side effects.
05:50So, there was a cataract.
05:51His cataract was removed.
05:53The lens was removed.
05:55And now,
05:57when the treatment is completed,
05:58then,
05:59we have to follow up.
06:01We have to follow up.
06:09where do we have treatment?
06:11What is the treatment?
06:13What is the treatment?
06:13Because,
06:14in the beginning,
06:15it is a cataract.
06:18It is a cataract.
06:21It is a cataract.
06:27It is a cataract.
06:27It is a cataract.
06:30It is a cataract.
06:30It is a cataract.
06:38It is a cataract.
06:44so the healing is good.
06:45You can burn out.
06:48But if you have delayed or treatment
06:51or treatment not,
06:53or you are hiding in a group of children,
06:56you know, a friend will have been
06:58in the way that is coming up.
06:59That's the hope that it will be done.
07:01Then the disease will be worse and that will is
07:03worse than it.
07:04The disease will be worse than it.
07:05Then the disease will be worse than it.
07:11Then the disease will come up and also
07:13to the brain.
07:18Okay.
07:21If we talk about this,
07:23as a patient told us,
07:26in the way we are studying,
07:27because each child is starting to get started,
07:30she is going to go to school
07:31and then she is going to study after her.
07:33In that moment,
07:35what kind of help can be done here?
07:37Is it a special for her?
07:41or can they buy them?
07:45Tell us about the occupants.
07:50As for children's eyes,
07:53and they are weak because of the tumor,
07:56they can help them.
07:58There are low vision aids,
08:00such as magnifying glasses, scales,
08:04and you know,
08:05there are many techniques
08:07about how to increase the size of the letters to read.
08:12So,
08:13those who have one eye left,
08:27at least some vision is there,
08:28we can help them a lot.
08:30In other countries,
08:32I have seen,
08:33that,
08:34above all,
08:36they can learn everything.
08:37But those who have one eye left,
08:37blind patients.
08:39So,
08:40if there is a little vision,
08:41then the patient can get a lot of help.
08:43If you can think,
08:45if there is no one eye left,
08:46or if there is a little eye left,
08:49then if there is a little eye left,
08:51then if there is a little eye left,
08:51the little eye left,
08:51the little eye left,
08:53without anyone's help.
08:55And you know,
08:56how much it is for parents,
08:56it is for parents.
08:59So,
09:00it becomes a challenge for parents.
09:02Okay.
09:03Let's talk about research.
09:04Because there is a research center,
09:06the eye center,
09:08it is also known as North India,
09:12one of the largest centers.
09:15So,
09:15what kind of disease,
09:18retinoplastoma,
09:18is there any research done?
09:20Is there any research done?
09:21Is there any research done?
09:22Is there any research done?
09:24Is there any research done?
09:24Our research is going on,
09:27in which we try to know,
09:30how many chances of spreading this disease?
09:31How many chances of spreading this disease?
09:35How many chances of spreading this disease?
09:35How many times,
09:35if there is a whole disease,
09:38then it will come back again.
09:40There are blood tests for that.
09:43We see that there are cells,
09:46which are cell-free DNA,
09:48which is flowing in the blood.
09:50We can also pick up the test.
09:52So,
09:52we know that this patient will probably happen again.
09:56So,
09:56this is called liquid biopsy.
09:59This is called liquid biopsy.
10:00This is called liquid biopsy.
10:01There is a lot of research,
10:01world over.
10:02So,
10:05this is giving some good results,
10:08especially abroad.
10:09But,
10:10we have slight difference of opinion
10:12with the results already published.
10:14So,
10:15it is still in process.
10:17And very soon,
10:18we will be analyzing our data,
10:20since it is,
10:20we will get into account.
10:22Since it has been some years,
10:24we have seen such children.
10:26Our children are quite growing.
10:28Some of them are growing,
10:29some of them are also becoming married,
10:30and some of them are also going to think about it.
10:36Some of them have to think about it.
10:38if we ask them,
10:39what could it be possible for their children?
10:41To be able to be the children of their eyes,
10:43in their eyes, there are a lot of chances for their children.
10:49The first thing we can do is to show the children from the beginning.
10:55The other thing is that, as if the mother is pregnant,
11:02they start to show the children from the beginning.
11:04The ultrasound is a pick-up, the amniocentesis is a pick-up.
11:07But there is another way,
11:12the children should be given this option,
11:15that when the child is pregnant,
11:17they can test their cells,
11:22if they will have retinoblastoma in the beginning.
11:26So, when they become a parent,
11:30they can choose whether they want the child or not.
11:37So, this is the advance.
11:40And this option should be given.
11:43This option should be given.
11:45This option should be given.
11:46They should be given the option.
11:48They should have a choice.
11:52It is not their fault that they have retinoblastoma.
11:56But in the future, they can choose whether they want the child or not.
12:02So, when the child is in the pregnancy,
12:06they can know that they can test it.
12:09And if they don't test it,
12:11they can't test it.
12:12So, we encourage them from the beginning.
12:14Within a month, less than two weeks,
12:17we examine the baby.
12:18If the baby is there or not,
12:20we keep examining them.
12:22So, there are many cases
12:23that after the child was born,
12:24the child was born.
12:26But after a few months,
12:2913 months, 9 months later,
12:31the child has developed a tumor in the eyes.
12:33So, we have taken it first.
12:34We have treated it in the beginning.
12:36So, we can save the eyes and vision.
12:40So, there is a lot to look forward to.
12:46This is the eye specialist Dr. Usha Singh,
12:50who has told us that retinoplastoma is a disease
12:53that occurs in childhood.
12:55And the children have to treat it for years and years.
12:59So, they can save their vision.
13:05However, it is good to save their vision.
13:09It is good to save their vision.
13:10Because it is the most important role in their mother-in-law.
13:15Because if they take their children to the right time,
13:18they can save their vision.
13:20If they don't have knowledge about this,
13:24they can save their children for their own lives.
13:28This is the camera person,
13:30Kishan, Nagma Singh,
13:31Thank you, Report ETV, Bharat.
13:32Thank you, Report ETV, Bharat.
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