00:00He just stood up and started walking away.
00:03Connor started taking steps unassisted for the first time ever.
00:09I do remember when we were sitting on the couch right here.
00:13He just stood up and started walking away.
00:17We were all just like super shocked and it was like a really good time to experience.
00:22I think we were both just like blown away at the walking so early on
00:26when he was still at a very low dose of the medication
00:29because it was so unexpected.
00:31And we're talking about an 8-year-old, 9-year-old, 10-year-old
00:34doing these things for the first time.
00:36I mean, I still remember where I was when his smile came back
00:38and what toy we used to do it.
00:40It was the best thing ever.
00:42I have not seen Connor have a seizure now in four months.
00:45That's four months with zero seizures.
00:47And this is a kid that had daily seizures.
00:49If people are saying that he shouldn't be alive right now
00:52and he just started taking his first steps,
00:54I mean, what do we not know?
00:56Where are the limits to where we can intervene?
00:59You know, this is a 15-year-old that we started the study on.
01:02We're seeing that it's not too late at his age.
01:05That's why I keep pushing because for you don't know exactly where the limits are.
01:08We just know the potential possibilities are there.
01:11It's just a relief that I have a doctor for my son
01:14that's right there fighting for him like I am.
01:17She's incredibly intelligent, but she has the heart too for her patients.
01:21And that combo is what so many more families deserve.
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