00:03અરુદાયન વ્યાદુલ બારિન પડિન વારિ કષ્ટાલુ અની એની કાવુ
00:07મુંદગા વ્યાદિગુરિંચી તેલિસકો વડાણિકે પધુલુ સંખેલો આસપત્રિલુ તિરગાલી
00:21તેલિસિણ તરવાતકુડ ચીકીત્ચકોસં નાન પાટલુ પડાલી
00:42સિસ્ટિક પાઇપ્રોસિસિસ વંટી અરુદાયન વ્યાદુલુ ઈજાવિતા લોંડાય
01:08ઇલાંટિ વ્યાદુલનુ પ્રાદમિક દસલોને ગુતિંચડં
01:13ઓક સાડી ચિકિતસતો નઈયમયે વ્યાદુલુ જીવીતાંતં તકુવા કરચ્ચિતો ચિકિત્ચા ચિક્ચિક્ચિકુન
01:45We are working with multiple centers of excellence and I am here to congratulate government of
01:53Andhra Pradesh because this is a very unique opportunity for us wherein we are seeing the
01:59government being extremely proactive. It has all the methods and opportunities to make
02:06this program success. One is Poonarvika project which they already have Poonarvika
02:13scheme through which they can actually make rare disease drugs in India. See the major
02:20problem for rare diseases right now what we are seeing is the basic part of the drug
02:25what we call as API is manufactured in India but it is not made into a tablet or a syrup.
02:32We have to send that out of India and then import. That increases the cost and the availability
02:40of the drugs. Government of Andhra Pradesh can solve this.
02:42Pradhananga, Delhi Loni Ames, Puducheri Loni, Zipmar, Chandighad Loni, Postgraduate Institute of Medical
02:50Education and Research, PGIMER, Hyderabad NIMS, Madras Medical College, Bengaluru Medical College and Research
02:58Institute, Trivendram Government Medical College, PG Institute of Medical Education, Kolkata, Bhopal Loni,
03:05Ames20V Center of Excellence.
03:07The Center of Excellence is based on this program.
03:12category 1 category 2
03:14व्यादुलतों बादपड़ुट्सुनवारि
03:16चिकित्सकू
03:161st व्यादुल���
03:19in India
03:20category 3
03:21university
03:22zoning
03:38First
03:44What is rare diseases?
04:14What is rare diseases?
04:18What is rare diseases?
04:20What is rare diseases?
04:25What is rare diseases?
04:56What is rare diseases?
04:57What is rare diseases?
05:33What is rare diseases?
05:53What is rare diseases?
06:45Kaila United Against Rare Diseases Care पेरतो प्रत्यकंगा portal रूपन्सेशार।
06:59Thank you very much.
07:58Thank you very much.
08:02Thank you very much.
08:51Thank you very much.
09:36Thank you very much.
10:00Thank you very much.
Comments