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అరుదైన స్పైనల్ మస్క్యులర్ అట్రోపీ(SMA TYPE-1) వ్యాధితో బాధపడుతున్న పునర్వికకు విద్య, ఐటీ శాఖల మంత్రి నారా లోకేష్ అండతో పునర్జన్మ లభించింది. ఇంజెక్షన్ ను అమెరికా నుంచి హైదరాబాద్ రప్పించేందుకు మంత్రి నారా లోకేష్ చేసిన సాయంతో పునర్విక ప్రాణాలు నిలిచాయి. హైదరాబాద్ జూబ్లీహిల్స్ లోని రెయిన్ బో పిల్లల ఆసుపత్రిలో ఈ ఉదయం మంత్రి నారా లోకేష్ సమక్షంలో వైద్యులు అమెరికా నుంచి తీసుకువచ్చిన జోల్ జెన్ స్మా అనే జీన్ థెరపీ ఇంజెక్షన్ ను చిన్నారికి ఇచ్చారు. అనంత‌రం మంత్రి లోకేష్‌.. కుటుంబ సభ్యులతో మాట్లాడారు. వారు లోకేష్‌కు కృత‌జ్ఞ‌త‌లు తెలిపారు. ల‌క్ష‌లాది మంది ఆశీస్సులతో పున‌ర్విక ప్రాణాలు కాపాడుకోగ‌లిగామ‌ని లోకేష్ సంతోషం వ్య‌క్తం చేశారు.

#NaraLokesh #SMAType1 #Zolgensma #Hyderabad #MedicalMiracle #APNews #HealthNews #GeneTherapy #SaveChild #AsianetNewsTelugu #andhrapradesh

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Transcript
00:00How are you? How are you doing?
00:03Askar Amma.
00:05So, the idea is how do we bring it down?
00:06I think that's what we are trying to figure out now.
00:09He is, I think you know Ramesh.
00:13How are you?
00:14He is a neurologist.
00:15How are you doing?
00:16He heads, he is the director of Pediatric Neurology Department.
00:19Oh, nice, nice.
00:19He takes, he is the maximum series of research cases in the country.
00:22Oh, nice.
00:23The first case also, Ramesh on the digital pattern.
00:26Oh wow, okay.
00:272020.
00:31That time he has been sort of, you know, following this.
00:33No, no, I will reach out to you.
00:34So, I want to have a larger conversation with Novartis on the list.
00:38Yeah, so we were about to tell everybody.
00:39We just want to take a few minutes from you to present what the data is.
00:42Of course, we will share.
00:43And then see.
00:45Mom, how are you?
00:47Hi, Mom.
00:48Hi, Sir.
00:48Hi, Sir.
00:51Thank you, Sir.
00:51Thank you, Sir.
00:52I was in the room.
00:53Mom, Mom.
00:54Mom.
00:56Mom.
00:56Mom.
00:57Mom.
00:58Thank you so much, Sir.
01:01Thank you, Sir.
01:01Hi, Pati.
01:03Hi, T.
01:04How are you?
01:05I am in the room.
01:05Hi.
01:07Yes.
01:08You are in the room.
01:13All good.
01:15Thank you, Sir.
01:15Thank you, Sir.
01:16Thank you so much, Sir.
01:16No no, Rajal andran will be able to get up.
01:19No no, I do not know, andran will be able to get up.
01:24Everyone is starting to get up.
01:25I am not able to get up.
01:27Everyone is starting to get up.
01:29Everyone is starting to get up.
01:32There should be some leaders to support.
01:35Everyone is doing good, we need to do it.
01:38We need to get the support process.
01:42Our team has worked very hard.
01:46but it's unbelievable, one injection changed their life.
01:54This is genetic therapy.
01:57Thank you, Doctor.
02:01This is going to be in the future.
02:03There are a lot of genetic conditions.
02:05Now.
02:07Now.
02:08Now
02:12That's not a good thing.
02:15Well, they're a doctor.
02:16I'm asked.
02:18I'm asked.
02:19You're a doctor, the doctor.
02:26He's a doctor.
02:26He's anger.
02:28He's anger.
02:28Now, she's so ill.
02:30She has united the entire state.
02:32Yes sir.
02:33I am going to use the foreign medicine.
02:36I am going to use my own medicine.
02:38What is this?
02:41It is an injection.
02:43Yes.
02:50Hi.
02:53Hi.
02:53Hi.
02:53Hi.
02:53Hi.
02:55Hi.
02:55Hi.
02:56Hi.
03:02Oh and this is from Japan.
03:04Oh, that is from Japan.
03:05No, not so.
03:11Hello.
03:13He needs to go to Japan.
03:17What are they doing?
03:22Right now.
03:23Yes.
03:25Be all right.
03:26Right now.
03:29So this is a straight ingestion, and how much is the ingestion typically?
03:35One is based on the weight.
03:39One is based on the weight.
03:41One is based on the exact volume ratio.
03:43The exact volume ratio.
03:46It comes in minus 70 degrees.
03:48Oh, minus 70 degrees.
03:51Oh, no, no, no.
03:53I think that's why.
03:55I've had the manufacturing material.
03:57No, but.
03:58Yes.
03:58You made, you made.
04:00You made the, you made the laminar.
04:03You can stick to the cart.
04:05You have the round of the mid-range.
04:08You can stick to the cart.
04:11You didn't get it.
04:13It's like a 10th case.
04:15Oh, yeah.
04:16Oh, yeah.
04:17We are one after five centers in the country.
04:37I am knowing the issue now more better, she has opened her eyes to the issue very well.
05:05So, this is the last week, I have to test to the same.
05:08I don't know anything.
05:09Come on.
05:10What's up?
05:11You didn't do that, huh?
05:13Yeah.
05:13That's what it is.
05:14You know.
05:15I'm sure there's no way to go in there.
05:20What?
05:20Do you know me?
05:22Really?
05:22This is a disorder?
05:24Yeah.
05:24There are four different types of things.
05:28This one.
05:29I don't know.
05:29I don't know.
05:30I don't know.
05:31I don't know.
05:32I don't know.
05:34What's wrong?
05:34Yeah.
05:35Without the my concern,
05:36help me in the room.
05:38He's not here.
05:40He's not here.
05:43What's wrong?
05:46Wrong.
05:49Medicine, whether the hypothyroidism is symptomatic or not,
05:54you can prevent...
05:55...meditation.
05:58I don't know.
05:59I don't know.
06:01I don't know.
06:02I don't know.
06:25It's like a gene therapy.
06:48Also India has the scale, now what the companies want to do is they say we have the scale so
06:53let us discuss.
06:54We will have to have a serious national conversation, not just it.
07:28We will have to have a serious national conversation.
07:31Okay.
07:32So far how many injections have you administered?
07:35Totally here.
07:36So this is our 10th case.
07:3810th case.
07:39So we started in 2020 and so this medicine was approved by FDA in 2019.
07:4419th case.
07:4619th case.
07:4719th is right now.
07:5019th is right now?
07:59Yes.
08:0119th is right now.
08:03Why is this?
08:14Thank you, Dr. Garbada, we have a regular check-up, so I will follow up.
08:48Thank you, sir.
08:49Thank you, sir.
09:06Thank you sir.
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