Mui Thomas: 'How my rare skin condition motivates me'

DW (English)

This woman was born with a rare skin condition. Despite the challenges and online bullies, she's making it big as an influencer and sports instructor.

Transcript

00:00I'm covered in skin flakes because my skin basically generates far too quickly so for

00:26what would take you maybe two weeks to grow some skin I grow that overnight when I was younger I

00:42used to have brittle bones because my when your body is working so hard to regenerate skin because

00:54our skin is our biggest organ the rest of our body is a little bit neglected

00:59the doctor said that she was expected to die and unfortunately older sister had already died

01:12this is a stark reality you make a decision you either help you walk away and always this is a

01:21decision that you make in life but we wanted her that more we would have a family and so we were

01:28very keen on getting her home so that she could experience a family life

01:33I do recognize I look different however I do not believe that it is okay to post and write

01:48offensive comments like you should have been burned you should have been you know were you um

01:55were you burned at Chernobyl okay however for me I have all of you and

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