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Makayla’s Voice: A Letter to the World (2024) is a heartfelt documentary that shares the inspiring story of Makayla, a young woman who communicates through eye-tracking technology. Through her words and perspective, the film highlights the importance of inclusion, understanding, and the power of finding one’s voice. This moving story is a celebration of resilience, hope, and the strength of the human spirit.
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Art et designTranscription
01:00The most beautiful sound I ever heard
01:05Is the empty way the air flows between the trees
01:11The sound goes unnoticed by most
01:15But to me, it sings
01:19It creates melodies that resemble my own silence
01:25I belong in nature
01:28Effortless noise
01:32The wind is my muse
01:36It inspires me to beam in my own way
01:40Silent, not us
01:44We are the sound of hidden beauty
01:49Winds of autism
01:52I soar in trees
01:58Think about that one
02:01P
02:02Mm-hmm
02:04Mm-hmm
02:05Mm-hmm
02:06Reach
02:08Portia
02:09I
02:11Is
02:12My
02:14You got it
02:15Don't put it down until you get to your letter
02:19There you go
02:19Portia is my voice
02:24Awesome
02:25I love that voice you picked
02:28My name is Michaela
02:48And I live in Atlanta, Georgia
02:50With my family
02:51My mom is a fashionista who owns a boutique store
02:56My sister is studying music in college
03:01My brother is heading into middle school
03:05My dad is a famous music producer
03:11And I have autism
03:17Silence is my cage
03:20But it is my gift to the world
03:22To sing my silence out loud
03:25It is my hope to inspire you with my journey
03:28Thanks for being here
03:30This is my song
03:32So
03:37Michaela's official diagnosis
03:40Is the 22Q deletion
03:44It's the Phelan McDermott syndrome
03:46So basically she has a partially deleted chromosome
03:50So it's a pretty rare diagnosis
03:52And there was nothing anybody could do about it
03:58Everything just didn't come together like it was supposed to
04:01Michaela, I don't know what you want
04:09Probably the thing that's been the most frustrating for us is knowing that you know your daughter you know for 14 years you know we're sure she has plenty of things to say
04:14Or things that she's thinking about but she can't communicate and um
04:20That's probably the most heartbreaking thing about this whole thing is you know she wants to say
04:25Probably the thing that's been the most frustrating for us is knowing that you know your daughter you know for 14 years you know we're sure she has plenty of things to say or things that she's thinking about but she can't communicate and um that's probably the most heartbreaking thing about this whole thing is you know she wants to say
04:38Or she can or she can or she can or but she just doesn't know how to get it out of her
04:57Like I said I have autism it is a huge part of me
05:13I do not speak but I do communicate I use a letter board to type out my thoughts it is hard work but worth it
05:25I am also a girl who loves music
05:31And has an interest in art
05:35I recently went to Paris and saw great pieces by my favorite Vincent van Gogh
05:42He is trapped inside his emotions the way I am trapped inside my body
05:50And has an interest in art all over the country
05:55It is hard to communicate
05:56Van Gogh used colour to communicate
05:58Van Gogh used colour to communicate
06:00Van Gogh used colour to communicate
06:01Van Gogh used colour to communicate
06:03Van Gogh used colour to communicate
06:07For speaking people language is only worthy if they're spoken by someone with speech
06:10But the deepest messages come from those who like Van Gogh and me communicate differently
06:18C'est vrai qu'elle ne connaît pas qu'elle ne connaît pas.
06:48C'est un beau truc, parce que c'est comme ça, qui est ce qu'il y a cette fille ?
06:54Et nous sommes toujours en train de savoir qui elle est.
07:05Ma mère, c'est moi, Mikaela, votre petite fille.
07:09J'ai écrit parce que je n'ai pas la chance de parler avec vous dans ma vie de vie.
07:15Mom, so many things I have to tell you.
07:18First thing, I'm super, super smart.
07:21I learn by listening.
07:23My mind is a sponge that drinks knowledge like it's juice.
07:28All my senses are heightened and I can feel emotions through them as if they are music.
07:34In my silence, I've learned that many assume silent equals dumb.
07:40I don't like that.
07:42It hurts my feelings.
07:44It's mean.
07:45But I also understand why it's thought and that makes me sadder.
07:51I know that I'm lucky you and Dad found Roxy so I could do this.
07:57All I have dreamt about in all my dreams really is doing this.
08:02Christmas is coming and I have one huge request.
08:06I want to date with Dad to see fishes and dolphins in the aquarium.
08:12I love you, Mom, Mikaela.
08:15When a student is first learning how to use the letter boards, they might need a lot of assistance, a lot of prompts.
08:24There's a motor piece where it's Mikaela using her body to literally get every single letter on the letter board.
08:32And so that motor piece is something that's pretty exhausting.
08:37One more.
08:38There we go.
08:43In the beginning, with Mikaela, we would do lessons and I would ask her,
08:47Today we're learning about galaxies, let's spell galaxies.
08:50And it wasn't that I was quizzing her on how to spell galaxies.
08:53I was helping her become confident in her body and pointing to the letters accurately.
08:59The stronger she got, the more confident she became.
09:03And the more I was able to open up the questions to be able to ask something like,
09:07Tell me about autism.
09:08What are your dreams?
09:09Because at that point, she's figured out how to move her body and point to these letters accurately.
09:15I feel like Mikaela specifically, she's tapping into a layer of herself that most of us, especially speakers,
09:26just don't have access to because we are constantly listening in order to respond to somebody else.
09:32Whereas Mikaela's listening and she's taking in her world and internalizing it and reflecting on it at this deep, deep soul level
09:41that I feel perhaps her father has access to as an artist.
09:59Hi, Dad. Happy late Father's Day. I'm so sorry I'm late.
10:06I love you so much. It is unreal.
10:12I am so lucky to be your daughter.
10:15I get so happy when you are near me.
10:19I giggle and cheer because I don't want to allow you to ever doubt your worth.
10:25Daddy-o, you gave me so much limelight, music and love.
10:32You found my voice before anyone else did.
10:36When I myself never knew my voice could be heard.
10:40A lot of my strength comes from the way I see you work.
10:44You are the best.
10:46I love you, Mr. Dad.
10:49Mikaela.
10:51I need to ask for help.
11:01I run when my body separates from my mind and then I notice and get scared so my legs move forward.
11:07Eloping is what Mom and Dad call it.
11:09The hard thing is I panic, so it's kind of hard to pause when I'm freaking out.
11:18I need help.
11:19My hunch is that I need space to hear my music, but my body takes my idea too literally.
11:27My head hurts and this happens a lot in storms.
11:37I'm thinking I'm needing a little rest.
11:43Silence.
11:58Hi, Roxy.
12:00I did not like school today.
12:03It really confuses me how my body creates so much trouble for me.
12:09How is it fair that I have these troubles and it's only me?
12:15I got mad today at school because I had a major moment of envy.
12:20Is that bad to have jealous feelings?
12:27I'm just, I'm not sure how to feel big emotions without my body exploding.
12:41Everyone has everything and nothing is hard.
12:46All hardships erase joy.
12:50I have an example.
12:51Autism.
12:52I wish I could be more like my siblings.
13:02How can I feel so much in silence?
13:10Emotions are hard to keep inside.
13:14They rupture our insides if kept in.
13:18With silence, we are forced to hold it in.
13:23We don't get to choose how to release or express how we feel.
13:30So emotions for those like us come out oddly.
13:33We also experience so much alone.
13:39Thanks to autism.
13:42So we are left in our big feelings alone.
13:46That's scary.
13:47And that fear causes us to do things we normally would not dream to do.
13:54Forgive yourself.
13:56That's the best way to release.
13:59And by doing that, you teach forgiveness to others.
14:05How are autistic individuals special?
14:08So really in thinking about in regard to the gift.
14:09A.
14:10A.
14:11A.
14:12A.
14:13A.
14:14A.
14:15A.
14:16A.
14:17A.
14:18A.
14:19A.
14:20A.
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14:26A.
14:27A.
14:28A.
14:29A.
14:30A.
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14:55A.
14:56A.
14:57A.
14:58I love our colors surrounding the heart.
15:01I literally see that.
15:04It's music, silent like me.
15:08Roxy, I wish I could show you.
15:11It is so beautiful,
15:13like the nebula you showed me.
15:16I hope I can change the world.
15:18Am I able to?
15:20I hope I can be confident enough
15:22to not be scared to have influence
15:24to change hearts.
15:26I want to show these boards to the world,
15:29be an advocate for autistic people without a voice.
15:32I think my father can help
15:34since he knows so many people.
15:38When she letterboards, it's the small things,
15:41the fact that she calls me daddy-o.
15:43Like, how does she come up with daddy-o?
15:45I never said the word daddy-o.
15:47She'll bring up things that we may have said years ago.
15:52We always call her pretty girl,
15:55and I remember the first time
15:57her letter boarding to her, to my wife,
16:00it was like she was basically introducing herself
16:04to my, to my wife
16:06and just saying like,
16:08look, look guys, this is, this is me.
16:12I'm your pretty girl.
16:13I'm, I'm, I'm really smart.
16:31I pro-, I process information really fast.
16:38And, um, I'm different, but I'm here.
16:48And, and, and that's the biggest thing for me.
16:52It's like, I mean, she's 14 and we're having our,
17:02we're having our first conversations as of six months ago.
17:09She's a smart girl.
17:11She has it all in there.
17:12We just gotta, it feels like, it feels like a child
17:16that we have to go out and grab
17:19out of this, out of this body.
17:22So, um, yeah, it's, it's just, it's just amazing.
17:25And, you know, all our efforts now are just to continue this progress
17:30and keep, keep her talking, you know.
17:33Yeah. So sometimes when Michaela and I are together, I asked her if she wants to do a lesson or a creative writing.
17:44And this one day in particular, she wanted to do a creative writing and she wrote the most beautiful piece of writing I've ever heard.
17:53She's written many things after this, and this is still the one that stands out to me.
17:57And so the question that she was asked was snakes, are they interesting or creepy?
18:02and why?
18:04Um, and this is what she wrote.
18:06I once noticed a tiny snake slithering on the ground.
18:10It dared to exist in a space made for others not like him.
18:15Some people ignored it, others feared it, and some deemed it dumb and unworthy to live.
18:22They laughed and sneered as they became the predators to fear.
18:26Soaked in their own misjudgment, they dared to end its life.
18:30Noticing this threat, the snake began to hide.
18:34Like a lightning in the nocturnal sky, the snake began to move.
18:38Back and forth it went, as if demanding to be heard.
18:42Back and forth it went, becoming the new predator.
18:46I often feel like that snake.
18:50Small, unseen, unnoticed, and sometimes feared.
18:54I live silently in a world of talkers.
18:56The snake lives discreetly in a world of walkers.
19:00My letter board is how I demand to be heard.
19:04Back and forth I move my index finger, spelling out each chosen word.
19:10Back and forth I type, unbecoming the mute that once lived inside.
19:14Creepy or interesting, I'll let you decide.
19:18I hope to help others.
19:22I hope to keep learning about the world.
19:26I hope I can end silence and autism.
19:30I love this voice.
19:32It is raspy like I imagined, but I want to use my real voice now.
19:42What can you tell Dad?
19:44I?
19:45Yeah.
19:46Yeah.
19:47Oh my gosh.
19:48Thank you.
19:49Thank you so much.
19:50Thank you so much.
19:51I love you too.
19:52Heh heh.
19:53Do you have any questions for us since we're all together?
20:20This is a, this, we, we're never really all together at a letter boarding session.
20:25Okay.
20:26Okay.
20:27I'm wondering how you see, I'm wondering how you see.
20:34Beautiful, strong, brilliant.
20:37I really wish to be as smart as you one day.
20:44Who's your favorite friend at school and why?
20:47Why?
20:48She's your favorite.
20:49And then K and spunky.
20:50She's spunky.
20:51Yes.
20:52She is spunky.
20:53Is there anything you want to do for a living?
20:54Okay.
20:55I got you.
20:56P then H then O and author.
20:58You want to be an author?
20:59Yeah.
21:00Yeah.
21:01Yeah.
21:02Yeah.
21:03Yeah.
21:04Yeah.
21:05Yeah.
21:06Yeah.
21:07Yeah.
21:08Yeah.
21:09Yeah.
21:10Yeah.
21:11Yeah.
21:12Yeah.
21:13Yeah.
21:14Yeah.
21:15Yeah.
21:16Yeah.
21:17Okay.
21:18When you're on your way, you talk like an author.
21:26What's your favorite place to travel?
21:28It's M-E-X.
21:31Right on it.
21:32Right on it.
21:33I-Z.
21:34Right on it.
21:36Mexico.
21:37She talks about it a lot.
21:38Okay.
21:39You want to go for like this Christmas break?
21:43Okay.
21:44Yeah.
21:45Oh.
21:46She said, yes.
21:47C.
21:48Yeah.
21:49Yeah.
21:50Are there any other languages you would like to learn?
21:59Russian.
22:00R-O-S-S.
22:01I reach a Russian.
22:05I cannot teach you Russian.
22:06You want to learn Russian?
22:07That's not what I thought she was going to say.
22:08Why?
22:09Why Russian?
22:10O-D.
22:11Odd.
22:12Yeah.
22:13It's an odd.
22:14Why Russian?
22:15O-D.
22:16Odd.
22:17Yeah.
22:18It's an odd.
22:19It's an odd.
22:28Why are you so resistant to getting in the pool at the beginning?
22:33T.
22:34S.
22:35M.
22:36Y.
22:37L.
22:38It's my style.
22:49Is there any kind of final words or any kind of statement you want to make?
22:54I'm I-M-N-O.
22:56Right on it.
22:57I'm not L.
22:58I've got you.
22:59I'm not S-I-L-E-N-T.
23:03I'm not silent.
23:04I don't know.
23:11Good job, Michaela.
23:12Good job.
23:13Michaela, I'm so proud of you.
23:14I'm so proud of you.
23:15You're being amazing.
23:16Yeah.
23:17So you can do anything you want.
23:19Say bye.
23:20Say bye.
23:21Say bye.
23:22Say bye.
23:23Say it louder one more time.
23:25Bye.
23:26Bye.
23:27She definitely seems to have a son inside.
23:28She couldn't come out.
23:29You learn it, Michaela.
23:30You're learning, Michaela.
23:31Congratulations.
23:32Abonnez-vous !
24:02Abonnez-vous !
24:32Abonnez-vous !
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