Dr. Trotti of Emory University discusses CoRDS patient registries, the impact a patient registry can have on research, and specific details for the Hypersomnia .\r \r \r \r The Hypersomnia Foundation is a 501(c)3, non-profit organization created to advocate, educate, and provide resources for research on behalf of people affected .\r \r Lets Get #BeyondSleepy in Boston | Advocacy and Empowerment | Sunday, June 4, 2017 Timeline: - 1:35 Monica Gow intro and registry talk - 20:50 Kate .\r \r Lets Get #BeyondSleepy in Boston | Advocacy and Empowerment | Sunday, June 4, 2017 Timeline: - 6:50 Diane Powell opening remarks and board member .
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